Resources
Neuroendocrine Cancer Resources
Fortunately for us the medical treatments for NETs are being developed rapidly at this time. These are good starting points.
The Healing Net Foundation
They both had a vision to optimize
Their mission is to educate and collaborate with physicians , health care providers, patients and caregivers. Please look at their web site to meet the new Executive Director Tracy Rode. The Healing NET website will help in the navigation of a NET patient journey. You can download excellent patient publications that will provide you with a wealth of information.
The Healing NET Foundation mission is to optimize the care of those with neuroendocrine cancer through the education of and collaboration among physicians, health care providers, patients, and caregivers.
The Carcinoid Cancer Foundation
The Carcinoid Cancer Foundation began as the Carcinoid Tumor and Serotonin Research Foundation in 1968 when the NIH fund for rare cancers was terminated. The name was changed to the Carcinoid Cancer Foundation in 1995. It is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers.
A great starting point for information on NETs. Includes a NETs doctor database.
NET - Neuroendocrine Tumor Research Foundation
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for neuroendocrine cancers.
NANETS
The North American Neuroendocrine Tumor Society’s (NANETS) mission is to improve outcomes for patients with neuroendocrine tumors through multidisciplinary medical education, NET related medical research, publication of guidelines and the exchange of knowledge and innovation.
Carcinoid.com
Information on Carcinoid Syndrome, Neuroendocrine Tumors and Health Care Professional Resources – Hosted by the Pharmaceutical Company Novartis